I’m thrilled to share today’s article, written by another volunteer summer guest blogger, Mommy PhD (also known as Alison). As her stage name suggest, Alison has a PhD in Biology and Biomedical Sciences and post-doctoral training in neurotoxicology and epigenetics. Aside from being a mommy, she also currently works at Emory University as a post-doctoral fellow.
I follow Mommy PhD’s page on Facebook (you should, too!) and we’re in a few sciencey groups together, so I’ve been following along with her recent efforts to bring attention to what can only be described, in my opinion, as a group of terribly misguided parents engaging in horrific acts of (hopefully) unintended child abuse led and encouraged by a fanatic cult. This topic is a bit outside my usual realm of issues, but I asked Alison to write this post because, as a mother (and a human), I was appalled when I learned about it, and I think parents should be aware that this is happening and know of ways to help. Fair warning: some of the information and images below are a bit shocking – it turned my stomach, it might turn yours as well, but I hope bringing attention to this underground movement will help stop it. Thanks for reading, and thanks to Alison for her hard work.
——By Mommy PhD ——
Over the past few months, I have been working with an amazing group of people from all over the world to raise awareness about the use of Miracle Mineral Solution (chlorine dioxide, or CD, an industrial bleaching agent) as an enema to “cure” autism. Proponents of MMS claim that autism is caused by parasites and that bleach enemas remove these parasites and thereby “cure” autism. But what they think are parasites are really the lining of these children’s intestines that have been stripped away.
Some people blame the parents, but the real blame lies with the proponents of MMS who take advantage of parents who are searching for support and are overwhelmed with trying to help their child. In a way, as a mother, I can understand this. Parents will try anything to help their child. I have two kids and when it comes to protecting my children, I can turn into quite the mama bear. So when the proponents of MMS sell the false hope that autism can be cured, I can see how parents who can’t figure out what to do might fall for this. However, the proponents of MMS misrepresent science and flat out lie to support their lies. MMS has no benefit and can only cause harm.
- There is no scientific basis for the use of MMS to treat autism (or anything else for which it is claimed to be used).
- At the suggested doses, the chemicals in MMS are toxic. In fact, the most concerning effect observed in the toxicity studies of chlorine dioxide and sodium chlorite is neurodevelopmental delay.
- Using untested, unproven and unregulated treatments on children is childhood experimentation. To experiment on children without appropriate regulation and approval is highly unethical.
- There are many resources for support for parents and evidence-based information on autism. You can contact these places for recommendations in your area.
- The authorities are beginning to crack down on those who sell and promote MMS and related products.
What is chlorine dioxide/MMS?
Chlorine dioxide/Miracle Mineral Solution is an industrial strength bleaching agent that can be used in very low concentrations as a water purifier. CD/MMS is sold as a 28 percent solution of sodium chlorite and an activator (an acid like citric acid). When these are combined, chlorine dioxide is formed. However, as an analysis carried out by an independent lab at the request of investigative journalists in the UK, this reaction is highly inefficient and most (90 percent) of the sodium chlorite remains in this form. This produces a solution with a concentration of chlorine dioxide and unconverted sodium chlorite many hundreds of times higher than the acceptable limit set by the EPA. So when people use this product, as an enema or orally or as eye drops or however they use it, the toxicity results mostly from sodium chlorite.
Is chlorine dioxide a bleach?
Short answer: Yes.
Long answer: Yes. It is most definitely a bleach. See this article by Emily Willingham for a demonstration of what chlorine dioxide does to a navy blue cloth napkin.
Proponents of MMS will tell you that CD is not a bleach since it’s not household bleach (sodium hypochlorite). However, bleach is a general term that includes any compound that removes color. Chlorine dioxide is a bleach. It’s not household bleach, but it is most definitely a type of bleach.
Andy Brunning from Compound Interest created this graphic to demonstrate some of the many different chemicals that are classified as bleaches.
Who invented Miracle Mineral Solution and the CD Autism protocol?
MMS was invented by Jim Humble. He is not a doctor, yet claims that the CD/MMS protocols cure Ebola, malaria, HIV and other diseases. He invented this “cure” while on a gold mining expedition in Guyana in 1996. In online videos, he claims to be a billion-year-old god from the Andromeda galaxy, specifically from the Planet of the Gods. He founded his own “non-religious” church (their choice of words, not mine), the Genesis II Church of Health and Healing, to protect himself and his “Ministers of Health” against legal action relating to his promotion of this protocol. They do not even try to hide that they formed this so-called church to protect themselves against prosecution and share information about how to avoid the authorities. This church looks very much like a cult.
Kerri Rivera is a “Minister of Health” within this church and has written a book describing her CD Autism protocol, which discusses CD/MMS given by enema or by drinking to “cure” children of autism. She is also not a doctor. The justification for this protocol is that CD/MMS “cures” autism by removing the parasites (rope worms, not a real thing) that cause it. However, there is zero scientific plausibility that this treatment works. Autism is a not a disease to be cured. Research shows that autism is largely genetic. There is no link at all between parasites and autism. What Kerri Rivera and other proponents of MMS say are parasites are really the lining of these children’s intestines that have been stripped away.
For comparison, here are some images on the left posted by parents of what falls out of their children after treating with MMS by enemas. Compare to the images on the right of actual intestinal parasites that infect the human gut. Worms have symmetry and structure, which the intestinal lining does not. What you see on the left are mixtures of intestinal mucus, undigested food, fecal matter and blood. They have no structure, no defined morphology, no symmetry. These are not parasites.
How do the kids react to being given MMS enemas?
Parents who are carrying out this protocol share their stories online. They share stories about their children crying in pain as they are held down and an industrial strength bleaching agent is forced into their rectums. They share pictures of the lining of their children’s intestines falling out, toenails falling off, and hair falling out. They share that their children stop showing emotion and have a loss of appetite. These are all signs of chronic poisoning and chronic abuse, but in these groups parents are congratulated for “curing” their children of autism. When parents post about disturbing symptoms their children are having in response to this “treatment”, the answer from the leaders is always – give more enemas. These children are in pain but children trust their parents. This is an utter betrayal of that trust.
Is CD toxic at the dose recommended in the CD Autism protocol?
Yes. In fact, the FDA issued a warning about using this product in 2010:
‘FDA warned consumers not to consume or use Miracle Mineral Solution, an oral liquid solution also known as “Miracle Mineral Supplement” or “MMS.” The product, when used as directed, produces an industrial bleach that can cause serious harm to health. The product instructs consumers to mix the 28 percent sodium chlorite solution with an acid such as citrus juice. This mixture produces chlorine dioxide, a potent bleach used for stripping textiles and industrial water treatment. High oral doses of this bleach, such as those recommended in the labeling, can cause nausea, vomiting, diarrhea, and symptoms of severe dehydration.’
In 2000, the EPA did a comprehensive review of all the literature on the toxicity of chlorine-based disinfectants including chlorine dioxide and sodium chlorite. They used this review to determine safe levels for oral ingestion of these chemicals. They also determined the effects of toxic doses.
The EPA concluded that oral ingestion of chlorine dioxide and sodium chlorite is safe below 0.03 mg/kg/day. This “reference dose” indicates the dose that is safe to drink every day of your life with no adverse effects. This means that a 20 kg child can safely ingest 0.6 mg (0.00002 ounces). While the EPA says these compounds are safe below these levels, this also means that above these levels, they are not safe. Doses of CD/MMS prepared as directed are 10,000 times higher than the EPA reference dose and 520 times higher than the WHO maximum allowable daily dose.
These are also oral doses. Doses given rectally (by enema) are likely to have a greater toxic effect as they are likely to be absorbed more readily. Rectal exposure was not tested by the EPA as it is not a common route of exposure for water disinfecting chemicals.
Perhaps the most shocking thing in this report is that the most consistent finding of long-term and developmental toxicity studies in animals was NEURODEVELOPMENTAL DELAY. So not only are people pushing a toxic substance, they are pushing a substance that is likely to cause the sorts of issues in children that they claim it prevents.
How do proponents of CD/MMS distort the toxicity data?
In CD/MMS groups, people will often cite this 1982 paper as evidence that the EPA says chlorine dioxide is safe. There are numerous problems with this claim that show the ways that proponents of MMS manipulate information and lie.
- They are misrepresenting the source of the article. The article was not a publication of the EPA or carried out by EPA scientists. It was carried out by scientists at Ohio State University and was published in the journal Environmental Health Perspectives, which is published by the National Institute of Environmental Health Sciences.
- The paper showed that drinking up to 5 ppm of sodium chlorite or chlorine dioxide for 12 weeks was safe. There is nothing wrong with the research in this paper. It clearly states that drinking half a liter (about half a quart) of a 5 ppm solution of chlorine-based disinfectants is safe. What dose is this? Assuming an average weight of 90 kilograms (almost 200 pounds) for an adult male, this is a dose of 3.5 MICROgrams/kg.
- Lab tests show that most (90 percent) of the sodium chlorite in MMS remains unconverted yielding a 391 ppm sodium chlorite solution with very little chlorine dioxide. This given as directed translates to a dose of 312 mg/kg daily (for a 20 kg child). That’s MILLIgrams. 312 compared to 0.0035. The safety of a 0.0035 mg/kg dose tells us nothing about the safety of a 312 mg/kg dose.
Medical experimentation on children
Another huge issue with using the protocol on children is that using unproven treatments on children is medical experimentation. Doing this without proper approvals and oversight is a huge ethical issue. The National Institutes of Health have strict guidelines governing when it is ethically appropriate to use humans and children as subjects in medical studies. All human studies performed by medical professionals must be approved by the Institutional Review Board (IRB), a committee of scientists, doctors and community members, to ensure that human subject research is conducted in accordance with all federal, institutional and ethical guidelines. To use an unproven treatment without approvals on a child is experimentation and violates all of these guidelines.
Where can parents of autistic children find accurate information and helpful resources?
I imagine that parents find CD/MMS because they are looking for support and resources to help them navigate raising an autistic child. It’s unfortunate that they find information about CD/MMS and other fake cures being peddled to parents, instead of the excellent resources out there that provide accurate information and resources. Here are a few reputable sources for different kinds of information about autism.
- Thinking Person’s Guide to Autism: This is a great resource for “for carefully curated, evidence-based information from autism parents, autistics, and autism professionals”. This page links to many blogs and Facebook groups in the Contributors sections. The resources section also provides links to many helpful resources.
- Autism Self-Advocacy Network: Their page also has a resources tab with helpful links. ASAN advances the principles of the disability rights movement. One of their major goals is to ensure that autistic voices are heard in the public conversation about autism.
- Simons Foundation Autism Research Initiative: for current scientific research into autism
- National Institutes of Health Autism Centers of Excellence: NIH-funded research centers in the US
What progress has been made to prevent the use of MMS?
Fortunately, over the past few months, we have made a lot of progress to stop these people from abusing more children.
- Products relating to MMS were removed from Etsy and the US eBay site (new ones are popping up on eBay and people are continuing to report them).
- Louis Daniel Smith in was convicted in US Federal court “for selling industrial bleach as a miracle cure for numerous diseases and illnesses, including cancer, AIDS, malaria, hepatitis, lyme disease, asthma and the common cold”. He set up a fake water purification business to purchase the chemicals and to attempt to hide his activities from authorities. He was convicted of conspiracy, introducing misbranded drugs with the intent to defraud and smuggling.
- We held a small, peaceful protest at the AutismOne/Focus for Health Conference in Chicago, which I have written about before.
- During the AutismOne (known for promoting dubious “cures” for autism) conference in May, the Illinois Attorney General, Lisa Madigan, served AutismOne regular Kerri Rivera with a subpoena and Kerri signed an Assurance of Voluntary Compliance, acknowledging that she has violated the Consumer Fraud Act and prohibiting her from giving seminars promoting CD/MMS and selling or promoting MMS in Illinois. Read more on this at Debunking Denialism.
- There has been increased media coverage of this issue, especially by Phil Rogers and his team at NBC Chicago.
These are huge developments and the result of many months of hard work by many people. With the action by the Illinois Attorney General and the federal conviction of Smith, it is reassuring to see the authorities taking this seriously.
And, it’s not just in the US. In the UK authorities are also cracking down on the promotion and sale of these products and conferences promoting MMS in the UK have been cancelled after public outcry.
How You Can Help: Reporting products on Etsy and eBay
We were able to get Etsy to remove all CD/MMS related products from their site. We have made progress with eBay, but it’s been a little harder (their site is bigger and each country has it’s own site). A few months ago, I emailed with them and they changed their filters so most of these products were blocked before they could be listed. Due to that, all products were removed from eBay, but there is a slow trickle of new products being listed as suppliers learn how the filters work.
However, it’s still fairly obvious that a 28 percent sodium chlorite solution with Jim Humble mentioned in the product description is not intended for water purification. There are also vendors selling only the citric acid activator. This is highly suspicious. Why would you need only citric acid activator? My suspicion is that when someone buys the activator, the order confirmation is followed by an email with instructions to purchase the sodium chlorite independently from eBay. We are continuing to monitor and report these products to eBay.
If you’d like to help report products, search eBay for chlorine dioxide, MMS, miracle mineral solution, Jim Humble, or sodium chlorite. At the lower right of the product page, below the “People who viewed this item also viewed” section, is a link to “report item”. (You do need to have an eBay login to report an item.) Report the item as a “prohibited and restricted item” and a “hazardous material”. Under detailed reason, select “pesticides and poisons.”
It’s been a good spring and summer for the fight against MMS. The momentum is with us and we continue to identify and report sellers and distributors to the appropriate authorities. We will continue our outreach to educate parents and to help them find the resources they need so they don’t fall for false hope. Hopefully, we can make MMS a thing of medical history, like leeches and bloodletting.